I had to work yesterday for Amy. It wasn't bad considering I work on Thursday's, but I had to do her job (my old job). It was good...at the end of the day Dr. Williams asked me if I wanted to work more hours. I would like to work a little more, but babysitting is an issue...besides I love being home with my daughter.
At the end of the day Amy called me. Kennedy has Neurosclerosis. Basically she has a lot of tumors spreading throughout her body. They are in her brain, lungs, and liver. They are benign (thank you God) but with the tumors comes a lot of other problems (obviously). Amy and her ex-husband are meeting with a neurologist today and they will have to do some genetic testing. Kennedy will also have a full body MRI to see exactly how many tumors she has. This disease can cause blindness if there are any tumors behind her eyes (which she will be tested for when they meet with an opthomologist) It also causes developmental delays, which I guess Kennedy already had, according to Dr. Williams. The seizures seem to be the least worry right now. There are a whole lot of other things than can happen, but I can't remember everything Amy said.
I don't know what to say to her. I feel so helpless. While I was talking to Amy she started to cry and I wish I could have been there to hug her. I feel so terrible for her. It really makes me so thankful that Olivia is healthy. Please pray for Amy and her family....they have truly been thru the ringer. Her mom has leukemia, waiting on a bone marrow transplant, her sister Jenny was just diagnosed with Type I diabetes and is very depressed and has a lot of pain in her legs (permanent nerve damage) and has become very very skinny. And now this with Kennedy. On top of it all Amy has the flu! She's been out sick all week and she can't hold her baby because she doesn't want to get Kennedy sick.
All of this makes me count my blessings.
5 comments:
Wow that's so scary. You're right it does make you so grateful for the blessings you have. It's especially hard when it's your baby. I can't even imagine. I'll pray for them.
Oh Carrie, please tell Amy that my prayers are with her. I can't imagine how scary this must be for all of them!!!
wow, i feel the same way about amanda. her life hardly gets betterfor a moment and boom, another bomb. you wonder why we are so much better off.
I talked to Jennypie today....she's really having a rough time! I researched some stuff for her pain and I told her she needs to be more assertive with her docs but you know how sweet Jenny is.........I may have to go with her and kick some doctor butt! ha She says that Amy is trying to stay positive about Kennedy.
OH how sad. I will pray for her, poor girl. It does make you realize how lucky and blessed we are.
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